הינה לינק שכדאי לקרא. ../images/Emo91.gif
ביקשתי בפורום ביהו שמי שמטופל אצל פונזטי שישאל כי יקח לי בערך שנתיים להתרגל לרעיון של עד גיל 4. אני מביאה כאן לינק לשתי הודעות, בזו אחר זו של הורים שלילדים שלהם חזר הק"פ. אמא אחת כתבה בסוף שלשים את הנעליים זה כמו לשים פיג'מה וכד' אז למה לא לעשות את זה. הצורה שבה היא כתבה את זה היתה כל כך פשוטה ודי עודדה אותי, או יותר נכון עשתה לי קצת סוויטצ' לאיך לחשוב. הינה הלינק:
http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/20769 אני ממליצה לפנות אליו כי אני לא יודעת כאן איך מיישרים כאן את תוכן ההודעה לשמאל וזה יותר נח לקרא. From: "shelleylapp" <dslapp@f...> Date: Fri Apr 23, 2004 9:35 pm Subject: Re: Back from Iowa: Update on Kavan & regression in toddlers... Tina, I am so glad to read of your success with Kavan. I also had a boy in the summer of 2000 with cf. He was treated with the Ponsetti method, had the tenotomy and seemed fully corrected. Like you, though, we were advised that we could quit the DBB at age 2-- far, far ,far too soon. And we did it. I can't believe we didn't research more but hindsite is always so good, isn't it? Now at 3 1/2 he is relapsing. It's not severe yet. Just looks slightly pigeon- toed to those who don't know better. His heel cord is doing well. Our dr. says he'll likely be an ATTT candidate in the future but not yet. And we're supposed to just wait and watch. I guess my question to you is what does a severe relapse look like? Do you have any digital pictures of Kavan's feet you'd be willing to email me showing what he looked like before re-casting? Do you have any advice about this waiting game? It is not sitting well with us. Thanks for sharing your story and success!!! Shelley --- In
[email protected], "mommaof8kids" <kbyrd915@c...> wrote: > Hello all! It was a quick trip, Kavan and I left Indiana Thursday at > 1PM, made it to Iowa in 7 hours, slept at Best Western Canterbury Inn > and we were with "Papa Ponseti" (as we have affectionately always > called him)at 10AM on Friday. > A quick update if you missed our message a few weeks ago. Kavan was > successfully treated as infant by DR. P. We quit wearing the FAB > about a month before his 3rd b-day ( due to bad advice by a local > physician, and a momma of 8 that was too lazy to take him to Iowa > like i SHOULD have!). Kavan was born with bilateral cf, with the > right foot being more severe than the left. When he regressed, the > right foot was much worse than the left. > Two weeks ago, Dr. P. gave us little hope that casting alone would > correct the severity of the regression, esp. in the right foot. He > felt sure Kavan would need another tenotomy in the right foot (after > at least 3 castings) and gave us a 50% chance that he would still > need the tendon surgery. > Well... when Dr. P. saw his feet and saw him stand with heels FLAT to > the floor he burst into a huge grin and with that oh so unmistakeable > sweet voice said, " OH, Kavan, your feet look BEAUTIFUL and oh my > your heel cord has stretched beatifully, I have NEVER seen a toddler > respond soooooo well!". AFter looking up to thank God, I cried on > Dr. P's shoulder with relief. Kavan's left foot was already > COMPLETELY corrected and his right was almost there, only requiring > ONE more cast!!!!!! Since the right still needed a cast, Dr. P. had > to recast the left since he could not go into the FAB right now, > however, he only casted the left up to the knee to give Kavan a bit > more freedom, yet still keep the foot in corrected position. > Dr. POnseti said Kavan will NOT require the tenotomy afterall, and > says there is now less than a 5% chance that he will need the surgery > either.... praise GOD! He is letting us take him in 3 weeks to a > local orthopod who traind under him, and allow him to take the casts > off and then straight into the FAB 20 hours/day. > TO THOSE OF YOU WORRIED ABOUT RELAPSE: Obviously Kavan is a perfect > example of JUST how important the FAB is. Dr. P. and Dr. Merc. both > explained AGAIN to me, that it is only NOW that we have the data from > the 'original' kiddos like Kavan (which was when the POnseti > technique was really making its resurgence)that we can really know > what we need to about the possiblities of and treatment for > regression. Kavan will wear his FAB until age 5, and then I will > STILL have to hear from Dr. P. that he may come out of it. From a > mother who has been through it all, I would like to make ONE > suggestion to you mothers of cf infants. The FAB bar becomes as much > routine as changing their diaper and putting on pj's for bed.. it is > so simple and such a guarantee of not having to watch your toddler > suffer dragging hip to toe casts around while trying to keep up with > his 7 brothers/sisters in our case! Now that we know regression is > possible with a large growth spurt between 3-5, why NOT keep the bar > on? I only wish I would have been armed with the blessing of the > knowledge that you all are, as my son would have been better for it. > Please let me know if I can answer any questions or have left > anything out of our story that could help ANYONE. > With thanks and praise, > Tina and Kavan (born: 6-25-00 w/ bilateral cf)
