עדות חיה
אני שוב מקפיץ את הנושא הזה. הנה ציטוט מאם לילד עם ק"פ שחזר..ולמה?? נעליים!! באנגלית, קצת ארוך, אבל שווה לקרוא, במיוחד למטופלי שיטת פונזטי:
Hello! A brief update for any of you who don't know us. My son, Kavan, was born 6-25-00 w/ bilateral cf. - Initially treated locally w/ manipulation/short leg casts by local pediatric orthopod who used the 'KITE' method (totally unsuccessful) - Miraculously found Dr. Ponseti, went to Iowa at 6 weeks old, made five trips to Iowa in 31 days, and after 4 sets of casts, bilateral tenotomy, Kavan was fully corrected.. - Wore FAB faithfully until a month before Kavan turned 3. Local ped. felt it fine to DC use of bar, and with 8 kids under age 13, including Kavan and his 3 year old twin sister, a two year old and a new baby, made the DREADFUL MISTAKE to not seek Papa Ponseti's advise/wisdom on that one!! - Regression in both feet, right more severe. - Back to Iowa in March of 2003, Dr. P. decided to 'try' casting, but felt there would be 50% need of second tenotomy and ATTT in right foot. HOWEVER, after the first casts were removed in two weeks, left foot was COMPLETELY corrected and right (more severe)was almost there and flexibility in heel cord totally MAZED Dr. P. for a child of 3 1/2. Dr. P. sent us home with last set of casts to be worn for 3 weeks and said NO TENOTOMY would be needed and instead of a 50% chance of tendon transfer, it was much less than 5% now. Told us to have casts taken off locally and start the FAB for 18hrs/day for the first month, and we don't have to return to Iowa until June. **Well, our original local orthopod had watched Kavan's progress ( as I continued to take him and SHOW him, as he thought Dr. P. was a 'zealot' as he called it and that the technique would NEVER work) and a six months after he saw Kavan's correction he flew to Iowa and was trained under Dr. P. at one of his learning symposiums. It was an answer to prayer and a total SHOCK to me! I had also taken four of the other local kids born after Kavan w/ clubfoot and gotton them to Iowa as well. So... Dr. P. suggested I take Kavan back to this doc to have the casts removed yesterday. I did and Kavan's feet are BEAUTIFUL and totally corrected!!! HOwever, when I explained to our local ortho that Dr. P. was changing his FAB time wearing mandates, due to a few toddlers suffering regression from huge growth spurts after coming out at 3 like my son, he informed me that he only has his patients that he treats with the Ponseti technique he learned in Iowa, wear the FAB until 18 mos.!!!!!!!!!!!!!!!!!!!!!!!! I about FLIPPED out! I quickly took my 'soapbox' and said, oh no... this can't be! I explained that Dr. P. would NOT adivse/feel comfortable this with any child. I advised him to get ahold of Dr. P. and Dr. Merc. and get the info he appears to be lacking and TOLD him to use OUR story of Kavan's regression for the parents who say the bar is not possible for that long, yadda, yadda. **FOR ANY OF YOU BEING TREATED BY DR. PONSETI (U. OF IOWA)TRAINED ORTHOPODS: MAKE sure that you know EVERY aspect of how Dr. Ponseti wants his technique used. Beautiful casting and correction is only the FIRST half of successfully correcting this problem; the FAB use must be adhered to 100% to maintain what you and your child have endured with the casting/tenotomy! AS I explained to our local orthopod (after my blood pressure went down and I got over the shock/dismay of his incorrect use of the FAB time), I understand the FAB seems to be a real 'problem' to some PARENTS. HOwever, it really is the parents' attitude toward the FAB that determines how the baby/child will respond, just like with most things in parenting. IF it just becomes a part of bedtime/naptime routine like it has for many of us, it really is NO big deal. WHAT is a BIG DEAL is having to have your toddler REGRESS and having to RECAST at 3 1/2 like I did with my son! What IS a BIG DEAL is having to battle with the guilt as he drug those casts around for 6 weeks that IF ONLY I would have consulted Dr. P. first and continued with the FAB, my son would not have had to endure this. I guess my empathy toward complacency and complaining about the FAB use until 4- 5 years is pretty non-existant because I have not 'imagined' but had to LIVE with regression caused SOLELY from NOT doing just that and also is not the use of the FAB even if until age 5 ( it will not be a day sooner for our son) a small price to pay to avoid surgery if possible??????????????????? PLEASE don't become complacent just because your Orthopod may have been trained in Iowa under Dr. P. Be informed and know what you SHOULD be expecting, from this website at the least, and help us make all the orthopod's using Dr. Ponseti's incredible technique accountable to using it the way it was designed and the only way it will truly make the difference Dr. P. knows it can!
